A broken blogger

Today is Good Friday… so why don’t I feel “good?” Yes, I’m having a far better day than Jesus did, but… that isn’t exactly comforting – especially since I get the “you can’t be sad, there are millions of people who would KILL to have your so-called ‘problems’” (I know, I wrote a post addressing that topic about 3-4 years ago).

What set me off today was a relatively innocuous post on “The Joy of Autism.”

Ignoring or pretending someone isn’t there is a form of BULLYING. ~ Joy of Autism

 

I actually hadn’t thought of it like that – for me, it was often a relief FROM bullying. However, it made me realize that I’ve experienced nearly every kind of bullying – and several forms of discrimination – over my life. Honestly, the only ones I don’t have are physical and sexu…aw, damnit.

Actually, two separate incidents come to mind – one when I was 12 and the other 15-16 – one likely more serious than the other (though neither actually amounted to much in the long run and both parties have likely long forgotten all about their respective incidents – just as I thought I had).

I don’t know how to describe the first incident. I was away from home for the first time at what my parents called a “summer camp for kids with ADHD” (more like a 6 week “my first program” with sneering counselors, therapy games and roommates who clearly resented sharing space with a “retard”). As I said, I was 12, and they had these things called “showers” (a concept I was wholly unfamiliar with at the time as I only knew baths) …so some adjustment was needed. Anyway, I was trying to clean the foreskin (it was a reddish grey color, which I assumed was just dirt) when suddenly my penis started pulsing wildly and exploded all over the shower wall and pretty much shocking the Hell out of me, not to mention nearly making me slip and hurt myself. I refused to even think about touching it again for the rest of the summer (I was there for both 3 week sessions).

I came out and the counselor wasn’t happy with me. Saying I had no reason to “take some damned long” in there and obviously had no idea “how to take a shower” (he was technically right on that front, so I couldn’t call it an “insult”). You can see where this is going, right?

Yep, the next morning, when it was time to think about showering, he rather irritably followed me into the shower room as I was getting undressed and when I got into the shower he barked: “Don’t close that curtain. You obviously have no fucking clue how to take a shower so I’ll have to ‘guide’ you through the fucking process. I like this as much as you do, so shut up, you’re wasting water!” It was extremely uncomfortable for me with him watching me from 5-feet away (he wasn’t in there WITH me, it just felt like it) and he was acting like HE was the one being punished for “having” to do it. Fortunately, I never “forced” him to do it again, but it made our interactions awkward and may even be the reason I avoid showers unless absolutely necessary.

The second one was arguably more serious. I was 15-16 and visiting my cousin Andrew’s beach house in NJ for the summer. His mom was driving and we were play wrestling in the back of her van (the seats were folded down). You can see where this is going too, right? No, we didn’t have sex, but his mom acted like I just raped her 10-year-old son in front of her. She was FURIOUS, and, while I can appreciate her diligence, I literally had no idea WHY she was screaming profanities at me for demonstrating a move I saw on TV (and just like TV – no contact was actually made, but she didn’t believe me nor give me a chance to talk. I was “fucking evil” and had “no business touching, let alone being near children ever again” and to this day, any time a child touches me I hear Cousin Twinks screaming at me. I couldn’t even talk to either of them at my aunt’s 10th wedding anniversary last year (I know they were both there, as they were seated at the table directly across from mine).

I consider these both acts of bullying. They consider their behavior justified – just like a story I was going to tell from Benchmark about psychical abuse\bullying (which still makes me paranoid at night), but I don’t have either the room or the mental stamina to continue with that train of thought in this post. Maybe some better Friday…

 

Update: In the meantime, I have examples of other more direct forms of bullying on this blog (all of them, conveniently enough, also entirely my own fault making the other party completely blameless for their behaviors regardless of how rude, mean, spiteful or otherwise hurtful they were): “Food Court Follies,” “A Family Frustration,” “Running Out of Ikeas” and to a vaguer extent “National Disappointment Day.”

Categories: Advocacy\volunteer, Autism, family, Gay rights, Health, holidays | Leave a comment

National Disappointment Day

Today is National Siblings Day in the US. Yah.

I have two brothers, we aren’t as close (or anywhere near as supportive) as some siblings I’ve seen around the FB community, but we aren’t openly feuding to my knowledge. I’m a huge “disappointment” to them (yes, that’s an actual quote not an emphasis), but they (usually) aren’t mad about it, bro…

The lack of hostility doesn’t necessarily translate to acceptance or support, but if something goes wrong, they are more than happy to blame me for it. Don’t worry, even if it is demonstrably PROVEN beyond even the tiniest shadow of a doubt that it wasn’t my fault, it’s still my fault because… um, it just is.

I get invited to their major parties and what not, but it feels more like what they are expected to do than a sincere request. Maybe it’s just my “overactive imagination,” but as welcome as they say I am, it doesn’t feel like I actually belong there. It’s subtle, but unshakable.

Kind of like the difference between icy “awareness” and the warm embrace of “acceptance” (which I don’t think they’ve gotten to yet). If I had to put it into words, it would probably be like lukewarm resentment with a mildly friendly veneer over it.

Actually, I think my middle brother put it best: “You know, Sibling Day isn’t a real holiday.”

How disappointing – especially since I was looking forward to using that cute “I love my brother” graphic I swiped off FB at the top of this post. Maybe next year…

Categories: Autism, family, holidays, ramblings | 1 Comment

Photo: “Autism Burnout”

(Photo credit: facebook.com/Trish’s Autism Page)

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Photo: The power of “awareness”

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Photo: Please be understanding

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Photo: Other Autism blogs

(Photo credit: facebook.com/Joy of Autism)

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Autis-meme Awareness Day

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Transit troubles

Note: These are some actual updates from my Facebook page of the same name about my day going to\getting back from seeing the new exhibit at Orlando Science Center (a traveling one at that). Some of said stats have been edited to fit a more detailed narrative timeline.

 

10:56am – Chased out of the apartment by the obnoxious noise the landscape crew was making with their mowers and whackers. I got everything together to go out… just in time to see them packing up as well. Maybe a little adventure will give this headache a chance to go away…

11:35am – Disembarked at Lynx Central Station and immediately traded my transfer pass for a Sunrail card as I figured (wrongly as it turned out) that an 11-minute train ride would be easier than a 25 minute bus ride… or it would have been except the last morning train left six minutes ago…and “mid-day” trains come at TWO HOUR INTERVALS?

11:55am – I am strongly considering opening my Lyft app and requesting a fricken ride. The only problem is the battery on my phone is running out so I shut it down for the remainder of the afternoon to conserve power.

12:25pm – I am hungry, and decide to go into the actual station itself to get something to eat. It turns out, the building itself is pretty bare bones with restrooms (complete with not-at-all-creepy “these restrooms are being monitored…” sign #eww), vending machines and a rack of schedules across from the entrance (which was closed due to maintenance).

12:47pm – I just finished lunch at their tiny in-station café. No menu, no tables and the cashier tried to rip me off, but it filled 15 minutes so whatever. Yeah, meanwhile, I am sitting here realizing how noisy it is out here: birds, buses coming\going, station announcements and guys with leaf blowers (because someone hates me today).

-1:13pm – Only fifteen minutes to go. ^_^

-1:28pm – After watching two Amtrak and one southbound Sunrail train zoom past me, the Northbound train to Orlando Health finally arrives.

-3:38pm – On my way back from Orlando science center. I was there to see their temporary exhibit #AstronautOSC. I haven’t decided if it is worth writing a review of or not. I like space stuff, but this exhibition was kind of #meh.

-5:04pm – Got on at the wrong bus at the transfer so the driver rudely threw me off at the last stop. He did begrudgingly let me back on 15 minutes later with a condescending lecture about it being “YOUR responsibility to make sure you get on the right bus.”

Sorry, I keep forgetting I CHOSE to have a brand-new car totaled by a teenager I never saw coming. The best part, the state rewarded my pain and suffering by revoking MY license forcing me to deal with assholes like this. 😡

-5:21pm – Thanks to that blunder, I arrived at The Florida Mall about 40 minutes later than I planned. I have less than 20 minutes to get dinner on the opposite side of the mall before my transfer pass expires (as he refused to issue me a new one). Fortunately, it’s a food court, so it shouldn’t be too hard.

6:20pm – On my way back now, I had to use my last remaining ones as my transfer pass expired just as I was leaving the food court… but I still haven’t decided if I’m doing a full write-up my visit to OSC. Fortunately, I have just over a half-hour to make up my mind…

Categories: adventures, Autism, florida, LYNX bus, Orlando, sensory processing disorder, Sunrail, transportation | Leave a comment

Photo: Orlando Eye at dusk

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Photos: Pokefinder shots

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